Saving lives through non judgmental relationships (2:29)

Saving lives through non judgmental relationships

Under One Roof work towards keeping people safe.

They talk about how this is achieved by building trust through non judgmental relationship where residents feel accepted. The way they work with addiction may seem odd to some people but they understand that people need to and will make their own choices.

They give several examples of how through nurturing relationships with residents it has saved lives. Residents have the confidence to share deeper conversations and share when they need help.

She tells the story of one person who had injected spiked heroin. Only because they felt comfortable enough to say they were concerned for themselves they got the emergency help they needed before it was too late.

Unable to use gardening tools due to it being too risky (3:00)

Unable to use gardening tools due to it being too risky

Harry talks about the frustration of not being able to look after his garden due to his home support staff restricting him from using tools because of the risk.

This is despite having the experience and desire to learn from mistakes, he feels this is overprotective he is being treated like a child.

The conversation touches on broader theme of how disabilities can lead to patronising treatment, and the speaker advocates for the right to take positive risks and learn from them.

Being asked what you would like matters (3:52)

Being asked what you would like matters

Iris talks about the care she recieves at home. She reflects on the positive impact of being asked what she would like, how she would like it.

She feels comfortable knowing she can ask and this highlights how important a caring approach is for her daily living.

Giving the example of something as simple as drawing the curtains in the moring, being asked if she wants them drawn is the difference to how they feel for the rest of the day.

Flexibility and positive relationships make a difference. (1:50)

Flexibility and positive relationships make a difference.

Iris and Sue talk about what a difference feeling comfortable and confident to ask for things without feeling anxious make.Consistency and building relationships with caregivers are highlighted as key factors that make the care experience more comfortable.

Additionally, the company’s attentiveness and flexibility in swapping caregivers who are not a good fit contribute to a positive care environment. 

The Real Care Deal: Promises vs Practice (3:08)

The Real Care Deal: Promises vs Practice

Sue is asked what she thinks the Real Care Deal is and means. With her extensive experience working in the care field with Leaning Disability Sue is transparent that she feels cynical about another new name for something that has new words but remains the same.

She emphasises that unless it is followed by substantial action it is meaningless. Sue gives examples of her past experience where ‘new ideas’ have been launched to only experience the same problems, in particular people having to repeat the same information over and over and over leaving people deeply frustrated and exhausted.

Andrew talks about his mixed experiences of receiving care (4:20)

Andrew talks about his mixed experiences of receiving care

Andrew shares his mixed experiences of receiving care since a toe amputation following a workplace accident.

Home care support was arranged after they returned from hospital, which he appreciated because they were struggling but reluctant to ask for help at first.

He recalls one carer who was excellent, but they were sacked by the care company, he found this upsetting and difficult.

Andrew talks about the set up of his care, how he has some choice over the carers, that the conversations he has is what makes the difference and his frustrations when cares leave before the time they have allocated.

Kyle experiences of home care (6:36)

Kyle talks about his experiences of the care and support he receives.

Kyle shares his experiences of home-care, the good staff members, the team leaders if you can get hold of them, but Kyle is not so happy with the managers! Kyle talks about the staff who come into the home, who he enjoys talking with and chilling out with, after doing chores! 😉

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Experiences of care and support in Norfolk (5:33)

Experiences of care and support in Norfolk

Holly talks about her experiences of care and support as someone with adhd and autism, and the impact that has had on her wellbeing and mental health. The feelings of isolation, related to not fully understanding herself. The impact of her neurodiversity in relation to not being able to work, and the further impact on her own mental health and wellbeing. Holly describes her experiences of the living well with autism course, what was really good about it, but also what was really bad about it. Including being taught ways to being more neurotypical! Her response – “I’ve been masking for 37 years I want to know how to not do this, [mask] not how to push me back in there”

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James is deaf-blind. He talks about what it was like to have his assessment and review. (5:06)

James is deafblind. He talks about what it was like to have his assessment and review.

“James is deafblind. He talks about what it was like to have his assessment and review.

At his most recent review, he was asked lots of detailed questions about the hours his Personal Assistants work and the tasks they do each day.
James felt these questions did not fit his situation. They made him feel stressed and frustrated.

He sent an email to explain his communication needs. This helped a bit, but more changes were still needed.

James says the questions felt unhelpful and made him feel talked down to.
He says it would be much better if the review started with a relaxed chat, having a cup of tea together, before any formal questions begin.
He believes this calmer, more human approach would reduce stress and make the review feel more respectful and useful.”

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Continuing Health Care (CHC) Annual Assessment (10:16)

Continuing Health Care (CHC) Annual Assessment

Continuing Health Care (CHC) Annual Assessment

David describes the process of the Continuing Health Care reassessment to evidence that Pats progressive condition had changed so she was no longer eligible for Continuing Health Care funding.

In the first example the assessor introduced herself and announced she was there to save the NHS money! In the second example David likens the experience of proving Pat no longer had any ‘medical needs’ to the Monty Python sketch –

What Have The Romans Done For Us. Neither of the reassessments were upheld, and Pat continued to receive the quality care that she needed.