Glenn shares his experiences of living with Parkinsons “the gift that keeps on giving”, wanting to maintain his independence, and not wanting to accept help.

Glenn describes how the carers sometimes feel put out because he wants to do stuff for himself.

Glenn also describes how the decision to have care and support was right when it happens, alongsdie the challenges of having to adapt to different people coming into his home, and manage the uncertainty when people come in and find him ‘frozen’.

Glenn describes having to stay calm and confident and not get agitated when being supported. The gradual build of care has been good for Glenn, and the way this has been managed.

“Sometimes the carers come and say to me we havent done much, but I say you have helped me with what you have done, and not only that – the level of communication, I havent seen anybody all day and sometimes its quite isolating being by yuorself – being stuck in these 4 walls year in year out!”